Martin Center Sickle Cell Initiative (MCSCI) will hold a town hall meeting with representatives from the community living with Sickle Cell Disease (SCD), their families, researchers and leaders from collaborators including the Centers for Disease Control and Prevention (CDC). The meeting, the first of its kind in Indiana, will take place on April 21, 2016 at 1:30 P.M. at the Marten House Conference Center.
SCD is a common inherited blood disorder in the United States, affecting an estimated 90,000 to 100,000 Americans. The Indiana State Department of Health estimates that there are as many as 1,200 people with SCD in Indiana, with 500 – 600 of them living in the Indianapolis area. In SCD, the red blood cells become hard and sticky and look like a C-shaped farm tool called a “sickle.”
The purpose of the town hall meeting, that will take place the day before the 2016 Indiana Sickle Cell Conference scheduled for April 22, 2016, is to share information about SCD and its impact on patients and families in Central Indiana.
“We are delighted that CDC is coming to Indianapolis to hear directly from members of our community about how Sickle Cell is affecting them,” said Gary A. Gibson, President and CEO of Martin Center Sickle Cell Initiative. “We value CDC’s expertise and commitment to Sickle Cell and look forward to exploring opportunities to work together to raise awareness of SCD and improve the health of this population ,” he added.
“CDC is very concerned about Sickle Cell disease and its impact on individuals, their families and our communities,” said Craig Hooper, PhD., Director of CDC’s Division of Blood Disorders. “We are committed to innovative partnerships with organizations like MCSCI to expand research and services for those with SCD.”
MCSCI is the only agency of its kind in the state of Indiana. It exists to aid and enhance the lives of those affected by Sickle Cell and associated disorders by providing supportive services, education and advocacy.