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Historic Sickle Cell Legislation in Indiana

HB 1329MCCSI is pleased that State Representative Gregory Porter has submitted a bill to expand Sickle Cell services in the state of Indiana.  We are also grateful that the Chairperson of the House of Representatives Public Health Committee, Rep. Ed Clere, called the bill for a hearing.  The hearing was held on January 26th, 2015 in the house chambers of the Indiana Statehouse.

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In addition to the testimony of MCSCI President, Gary A. Gibson, and Chris Roberson of the Indiana Hemophilia and Thrombosis Center, the committee heard remarks from six MCSCI clients, including Shonda Ware (shown here).  This was the first time that many on the committee had heard this much about Sickle Cell Disease.  It was obvious that they were moved by the testimony of those who spoke.  In fact, at the time of this report, two more representatives have signed on as co-authors since the hearing.  That is a very good sign.

MCSCI is continuing to work with the bill’s author and others to ensure that the needs of our Sickle Cell community are not only heard and understood but responded to, as well.

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